Day 16

Imgur: https://imgur.com/gallery/day-16-no-15-Vlehspc

You may or may not have noticed, but I didn’t end up walking yesterday. I’m going to post more about my struggles on ieh.one so please click through if your curiosity is up for it.

Only two laps today. In part because for the second one, I was inspired to sort of try and walk with as little support from the walker as possible, which went ahead and wore my legs out quicker. But going and coming back for much of those halves, I was not using the walker a whole lot.

I definitely want to see what I can do with a cane, sooner rather than later.

Dialysis tomorrow, and I have time to plan and think ahead, but I’ll also open this up for your opinions: What do you think I should do tomorrow - focus more on walking more laps, or focus more on using the walker as little as possible? It’s your chance to influence my actions! :slight_smile:


And now to talk a little more about what happened yesterday.

While I’m not going to go in any kind of detail, know that I’m about to discuss unhappy bowels - in no more detail than this sentence, mind.

So one of the things that has been causing me troubles off and on for maybe a month to two months now are unhappy bowels from time to time.

The problem, as it relates to dialysis, is that it takes upwards of a half hour to be disconnected from the machine. If I know things are unhappy on a particular day, I may not feel… “safe” enough to get dialysis for that day.

Missing a single day of dialysis is not optimal, but it’s not the end of the world.

However, if I miss a second day, I have to go to the ER for dialysis.

So far, I’ve been lucky in that I’ve had to miss around 4 treatments in the past two months. But each time it has been stressful. Not only do I feel worse in the meanwhile, but also, if I miss a second in a row… I have to go to the ER and be admitted to the hospital, which is just dumb.

So here I am again, having had to call out this past Saturday. Next treatment is tomorrow, and I had unhappy bowels again today. So now I have to worry about tomorrow. If I don’t feel like I can go in, I have to figure out the timing for going to the ER.

So this is frustrating, and it has gotten to the point where I need to get a referral from my primary care to a specialist who can help figure this out, because it is disruptive.