Imgur: https://imgur.com/gallery/day-17-NT2XfYI
This is the first day I had to go look up which number day it was. That’s a kind of progress right there.
I didn’t sleep last night. I was up with an upset tummy, which I’ve been dealing with for several days. I missed Saturday’s dialysis because of it, which was not optimal, but fine. But if you miss a second day of dialysis, you have to go to the ER. So I was worried.
Around 6:30 this morning, I talked to the nurse at the dialysis place to help me formulate a plan. My wife went and got some meds, and I had a plan in place for if I felt safe enough to leave the house today or tomorrow - they would have been able to work me in tomorrow.
But I made it in today for a half treatment. It’s enough to keep me going, and Thursday i’ll have a full treatment and be back on the path again. Whee.
But I am exhausted this evening. And my shoulder is killing me. So two laps it was, and yet again another day I just don’t feel bad about that. I got up and I walked.
The next thing I have to figure out is how to get myself to stand up more often. I think that will help with the stamina. I’d been a bit afraid to because for a good while there, standing up took enough out of me that transferring more times than I needed to made me worry I wouldn’t be able to transfer when I needed to, which is a problem when one of those times is to sleep or use the restroom.
So I need to do that, as well as work with this dumbbell that I have.
My brain is still not convinced that my stamina will improve. But that’s okay. If I put in the work, it should improve.
Also, I’m not yet too worried about involving physical therapy. Last I checked, my only option would cost me $400/mo which I do not have - $50 copays and they have to see me twice per week. At some point, I will seek out a consultation with someone, though, so I can get enough pointers to make sure I’m doing the right things on my own. I’m not to the point of worrying about it too much yet. The progress I’m making so far is good enough. And frankly, I have learned not to do too many things at once with my ADHD, and right now I have to remember to make an appointment to have the catheter on my chest taken out so it’s no longer an infection risk… so that’s my top priority on this stuff beyond the tummy issues.